CBS 58 Milwaukee, 2013
An interview after Ray raised the most money in the 2013 Milwaukee’s Finest campaign for the Cystic Fibrosis Foundation.
Rebecca has lived with cystic fibrosis her whole life. This is the story of her fight, the people in her corner, and what we have learned along the way.

I’m an engineer and program manager by training, and a fighter by hobby.
I earned a mechanical and materials engineering degree from the University of Connecticut and an MBA from Indiana University. My career has run through operations, engineering, product management, and program management, and I hold a patent and a lean six-sigma certification.
The fighting came first. I’ve won two national championships, hold a third-degree black belt in Tae Kwon Do, and have trained and competed in Muay Thai, Jujitsu, and kickboxing. Nearly thirty years in martial arts taught me that nobody does it alone.
Rebecca’s illness pulled me into the CF Foundation, where I’ve volunteered and raised money for more than a decade. I was named “Milwaukee’s Finest” in 2013 and won the Eaton Stover Volunteerism Award in 2014.
Off the clock I work on my cars, lift weights, and entertain friends and family. I don’t enjoy running and I’m not good at it, but I do it anyway…like a boss.
“The mission of CF Cornerman is to support curing cystic fibrosis, help families facing a major illness, and share knowledge and experience. Always in your corner…”
Rebecca is the fighter in this story. I just stand in her corner.
Rebecca was eight months old when she was diagnosed with cystic fibrosis. She grew up riding horses, hiking, and running cross country, with CF along for every mile. She graduated third in her high school class, then earned a bachelor’s degree in diagnostic genetic sciences from the University of Connecticut, summa cum laude, with honors research at Johns Hopkins University Medical Center. She built a career supporting clinical drug research.
“I am not my disease.”Rebecca, in Just Breathe
In 2014 her lungs failed. She spent 172 days on a ventilator, and doctors told us she was too sick for a transplant. She did the work anyway, building her strength a little at a time with a ventilator and a walker, until the University of Pittsburgh Medical Center listed her. On June 18, 2015, she received a double lung transplant. “I owe my life to two angels: my donor and Ray!” she told Woman’s World.
Nine years later her kidneys began to fail. Her father didn’t hesitate to step up as her living donor, and in November 2024 Rebecca received his kidney.
Today strength is the goal. Rebecca lifts weights and has been running. In 2015 she couldn’t reach up to scratch her own face.
Watch Rebecca’s story in three short videos from Thermo Fisher Scientific’s Counting on You series.

Volunteering since 2013, from leading teams to chairing a board.
Local TV, newspapers, podcasts, and a TEDx stage have told Rebecca’s story and Ray’s.
An interview after Ray raised the most money in the 2013 Milwaukee’s Finest campaign for the Cystic Fibrosis Foundation.
Ft. Thomas husband writes book of love and lessons, covering the release of Lessons from a CF Cornerman.
Coverage of the Hospital Comfort Kit Ray developed as part of CF Cornerman, built from the couple’s long hospital stay.
Twenty-eight years, a lot of hospital rooms, and a lot to be grateful for.
We met at the University of Connecticut. Early on, Rebecca told me she had CF and asked if I knew what that was. I said of course. I did not. She handed me an eight-page technical article, which is the hazard of dating a cytogenetics major. I read it. She was worth it.
Visiting Pete, Rebecca’s stepfather, in New Orleans. Tune-ups were part of life by then, but so were days like this one. We were busy living.

This was taken nine days before Rebecca went into respiratory failure. Looks can be deceiving. We knew that one day she would need a lung transplant, but we thought that was a couple of years away.

On New Year’s Eve, Rebecca went into respiratory failure and was placed on a ventilator in a medically induced coma. They told me she would never breathe on her own without a double lung transplant, and then they said she was too sick to qualify for one.
We began 2015 with a prognosis of days to weeks. She would spend 172 days on the ventilator and 219 in the hospital. I learned the first lesson that morning: show up.


I learned that walking with a ventilator was possible, even though talking was not. Building her strength to walk again gave Rebecca a goal, whether or not she qualified for a transplant.

Outside, in the sunshine. You have to celebrate the small victories, because they add up to big victories. (Lesson 12)

If you have the opportunity, laugh. Rebecca did, with a mask on her head. (Lesson 16)

Spent in the hospital, with a banner in the window and a slice of cheesecake. Look for the things that bring joy, and make them part of your routine. (Lesson 15)


After five consecutive transplant hospitals said no, the Pittsburgh program listed Rebecca. The call came on June 17, and on June 18, 2015, she received a double lung transplant at the University of Pittsburgh Medical Center.

A lung-shaped cake for her lungiversary. Recovery was slow, with setbacks along the way. Two steps forward and one step back is still an improvement. (Lesson 8)

At the podium of the CF Foundation’s Volunteer Leadership Conference, which I co-chaired in 2022.

A boat in Italy with nowhere to be. This is what the fight is for.

An ordinary meal out, which is the whole point.

Nine years after her lung transplant, Rebecca’s kidneys began to fail. Her father didn’t hesitate to step up as her living donor, and in November 2024 she received his kidney. On the day we were released to go home, we stood beside the Bell of Hope and Gratitude. Rebecca’s sign said it best: Grateful.

A black-tie evening out.

At Pipeline to a Cure, a Cystic Fibrosis Foundation event, I carried Rebecca for the camera. Still her cornerman, still fighting for a cure.
