Resources
Places to learn more about cystic fibrosis, organ donation, and caregiving, collected from the back of the book.
Cystic fibrosis
- Cystic Fibrosis Foundation
Research, care, and community. The organization our fundraising supports. - Cystic Fibrosis Research Institute
Research and support for people with CF and their families. - U.S. Adult Cystic Fibrosis Association
Resources for adults living with CF.
Organ donation and transplant
- Donate Life America
Learn about organ donation and register as a donor. - United Network for Organ Sharing (UNOS)
The national transplant system and information for patients and families.
Ray’s writing
- Ray’s blog
Posts from the hospital and the years since. - Changing perspectives: lessons of a CF caregiver
A post Ray wrote for the CF Foundation’s community blog.